Making the decision to have a child – it’s momentous. It is to decide forever to have your heart go walking around outside your body. ~ Elizabeth Stone

Monday, June 29, 2015

Day 18

So today I cried. Yep. I cried big bucket tears, or as my girlfriend would say, I had the ugly cry face. They retested Elijah's chest output and it came back positive for fat, or chylous.  To top that off, they have seen the amount increase, not decrease. Now we are questioning their numbers because the tube had been clogged again, but nevertheless, things are not going our way. This is not news that we wanted to hear. The surgical team agreed to give him 24 hours before they make a change. However, if they do make a change it will not be a pleasant one. They will take away all food and drink for the next 3-7 days. If this does not work to fix the issue, then he will need another surgery.

On the bright side, I was able to see a glimpse of my little Elijah this evening. He perked up and was talking to everyone and asking to color. Elijah hasn't asked to do anything since we have been here. We have toys in the room, but he hasn't wanted to play with anything. We took him to the playroom and he didn't want to play, he only wanted to go back to the room. He is depressed and sad. Noah was able to get Elijah to paint with him and he managed to cheer him up for a few minutes this afternoon. But this evening I saw him smile and play. It breaks my heart to think of what we might have to put him through.

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