Well good news here. I had an OB appointment yesterday and baby Elijah's heart sounds good and strong. It's so strange to think that he only has half a heart and yet it beats at the right pace and sounds strong. I get a little frustrated at these appointments. Although I really do like my OB, he is waaay out of his league right now. In trying to ask him questions regarding HLHS he is of no help. He is taking directions from me as to how to handle my care. I wish he had more insight but the more I ask, the more frustrated he becomes. I had to just step back and stop asking questions. He has stopped giving me ultrasounds and now only uses the doppler. I think, to be honest, he isn't sure what he would be looking at on the ultrasound so he just doesn't go there. On the other hand, I have some great specialists who take time to answer questions and do really comprehensive ultrasounds, so I really shouldn't complain.
We are going to a consult at Children's Hospital in LA in a little over a week. Although we were pretty set on care at UCLA, upon several friends urging, we have decided to explore all of our options. Most decisions you make in life are not life or death choices, they are just one decision in a series you make throughout life. This decision, however, feels like it could quite possibly mean life or death. Scary stuff if you ask me.
