Making the decision to have a child – it’s momentous. It is to decide forever to have your heart go walking around outside your body. ~ Elizabeth Stone

Tuesday, June 23, 2015

Day 13

Today was much of the same except that today we got to visit the playroom! Noah came for his daily visit and we hooked Elijah up to a bunch of machines and off we went. The nurse stayed with us the entire time and Elijah was so, so happy. He and Noah played for about 45 minutes and then Elijah got tired. To top off all of the activity, Elijah went for two good walks. He is exhausted, but he is happier.

As for the draining chest tubes... it is trendy down, but not where it needs to be. Yesterday it was around 500 cc during a 24 hour period and today we are at around 400cc. The cardiologist came in and discussed some possibilities with us, none of which we liked. Apparently some surgeons treat prolonged draining by not allowing kids eat or drink for a week. That would be absolute torture for everyone. On top of all of that, the chest tubes stay in. I guess during surgical rounds, they discussed this as a possibility. I cannot imagine putting Elijah through that. I can only hope and pray that his output continues to slow at the current rate so as to convince the surgeons to give us more time.

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