Today marks two weeks at CHLA. Elijah is continuing to drain from his two chest tubes, although the amount has decreased. He is eating a low fat diet and and his fluids have been restricted. He gets daily x-rays and more meds than I care to count. His attitude is starting to improve. Today is the third day that we have been able to get up and walk. He was almost running today while walking with his brother. He spent an hour in the playroom before he tired. Overall, we are making the best of a long hospital stay.
I think that as long as his chest tube output continues to lessen, they will allow us to continue as planned. Unfortunately, Elijah pulled out one of his chest tubes by a couple of centimeters. This may or may not be a big deal, but it is a concern and may put us on more of a timeline. He is having a terrible time sleeping. It seems that the pain and aggravation catch up to him at night and he cries, tosses and turns, and moans for most of the night. I think that it was during the night that the chest tube moved. Both Dion and I have taken to spending most of our nights in his bed trying our best to comfort him.
Please continue to keep us in your thoughts and prayers.