Making the decision to have a child – it’s momentous. It is to decide forever to have your heart go walking around outside your body. ~ Elizabeth Stone

Friday, June 12, 2015

Fontan Night 1

Elijah did okay over night. They had to medicate him every hour to keep him calm. They are restricting his fluid intake and man oh man did that make him angry. Every hour, once the medication wore off, he would demand his water bottle. The nurse was able to keep him calm until around 5am. He became incredibly agitated and was thrashing around. They had to restrain him and put him on additional sedation. This was so hard to watch. During all of this, his heart rate increased and his sats decreased. He also developed a fever.

During rounds, the doctors developed a plan for Elijah to address his heart rate/rhythm issues which includes both medication and a pace maker. They also discovered that Elijah has fluid around his left lung. They are going to start him on lasix to helpfully dry him out and therefore negate the need for an additional chest tube. Basically, we now sit and wait and see if the medication does its job. Hopefully they are able to keep him calm and resting in order to allow his little body to heal.

No comments:

Post a Comment