I ask myself that question every day. This week was a rough one. Noah came home with a cold that quickly spread to Elijah, Monica, and me. Dion was able to escape it this time. Noah actually handled it pretty well and was his happy, go lucky self. Elijah was a train wreck. He stopped sleeping all together. His longest span of sleep this week was two hours that he slept after Dion gave him some medicine in the middle of the night. He basically cried and fussed around the clock all week. I don't think I have ever been so tired. I actually nodded off while coming home from work at a stop light. I am beyond exhausted. I'm not sure how much longer we can go without sleep. We take turns getting up with him, but our sleep deficit is so severe that we never feel rested, even on our nights off.
I decided that we are going to start sleep training this weekend. Because Elijah has been in the hospital so much, he has absolutely no self soothing skills. He had just started to consolidate his sleep before he was hospitalized for the Glenn. It is impossible to sleep long periods when in the CTICU. While in the CTICU he was basically taught to wake up constantly (nurses and doctors coming in and out) and wait for someone to come and sooth him back to sleep. Wish us luck, we have our work cut out for us.
On the bright side, Elijah went to his pediatrician this week for the first time since he was two months old. It was a very long appointment but it felt good to go to the doctor and have typical baby stuff to talk about. He weighed in at 11lbs 15oz and was 28 inches long. He isn't even on the charts. Everything else looked good. He got his four month vaccines and will get his flu shot next week. He will have to go in again in six weeks to get another round of vaccines. The pediatrician decided to take him off of the Protonics and see how he does. If all goes well, hopefully we will be able to also go off the Ranididine in a month. He still takes Lasix twice a day. We started solids this week as well. We decided to start with avocado because it is so full of good fat. Elijah doesn't quite understand that he is suppose to swallow the food. He moves it around his mouth and then spits it all out. We just keep trying!
He saw a pediatric urologist also this week and things look good. We were given the option to get him circumcised later this year. It scares me to put him under again, but the doctor reassured us that it is a simply procedure that he has performed on heart babies many, many times. He suggested that if it is even something we are considering, that we should do it now and not when he is older. The recovery is pretty simple and straight forward when they are little. It is a much more involved process when they get older.
He as an appointment with his cardiologist next week and he will have an Xray, EKG, and Echo performed. I'm actually a little nervous. If things go well, he could have a six month break between appointments. That would be incredible. It would be nice to have a break from doctors and hospitals for a bit.
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