Making the decision to have a child – it’s momentous. It is to decide forever to have your heart go walking around outside your body. ~ Elizabeth Stone

Saturday, September 29, 2012

Dr Appt Update

You know that you are desensitized when it doesn't panic you when your son's cardiologist tells you that he thinks that part of your son's lung has collapsed. That's right folks. Not so good news at the cardio appt Tuesday. Elijah's cardiologist is still concerned about his arch and the narrowing that the echo suggests.  Our little guy has decreased heart function, but before the cardiologist addresses the issue with medication, he wants to make sure the function isn't related to narrowing. He is also worried about the effort with which Elijah breaths. They did an xray and the cardiologist now believes that the hazy image is not fluid but perhaps part of his lung has collapsed. He thinks it is possible that the plication has come loose and caused the collapse. All of this to say that we are off to CHLA Cath Lab on Tuesday. He will be going in at 8am for a cath. If there is narrowing, they will hopefully be able to open in in the lab.

I know that this is not a major operation, but it still makes me nervous. They will have to put him under and intubate him. This procedure is what caused our three week hospital stay in July. The day he had his last cath is the day they had to call the code on him and we were rushed to the CTICU. I'm just not looking forward to Tuesday at all.

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