Elijah's Heart Journey: Follow Up Appt at CHLA

Tuesday, July 31, 2012

Follow Up Appt at CHLA

Elijah had his appointment today at Children's Hospital. They did an x-ray to look at his lungs and they still look a little "wet" which means that we will continue the lasix three times a day. His incisions look good and are healing nicely. When we were discharged they were concerned that they may be a bit infected so he has been on antibiotics, but it has cleared up! What was really exciting was that he gained weight! He weighed 9lbs 9oz at discharge and today he weighed 10lbs 3oz! I have been really concerned that he wouldn't gain weight because he hasn't been eating very well. It is such a relief so know he is growing!

I have been back at work for two days now. Dion is tired, as he has been doing all the night feedings and Elijah is eating every two hours. He also took Elijah to his appointment today. My boys are lucky that they have a dad that is not afraid to be involved. Noah started full day preschool yesterday. He is a mess when he gets home. Although he really likes his school (and LOVES his new CARS lunchbox), by the time he gets home he is so incredibly tired that he is not a happy camper. Hopefully, if we can get him to bed early and napping every day again, maybe he will return to our happy go lucky kid again. Overall, I am just grateful to have us all together- tired, grumpy, and all!

1 comment:

CheryleAugust 5, 2012 at 6:38 PM
Yeah for cars lunch box lol!!!! Dion is a great dad. Things will settle down slowly, but surely, just hang in there sweetie! Love ya all!
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The Chosen Mothers by Erma Bombeck

Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit. Did you ever wonder how mothers of children with life threatening illnesses are chosen?

Somehow, I visualize God hovering over Earth selecting His instruments for propagation with great care and deliberation. As He observes, He instructs His angels to make notes in a giant ledger. "Armstrong, Beth, son, patron saint Matthew. Forrest, Marjorie, daughter, patron saint Cecilia. Rutledge, Carrie, twins, patron saint Gerard."

Finally, He passes a name to an angel and says, "Give her a child with cancer." The angel is curious. "Why this one God? She's so happy." "Exactly" smiles God, "Could I give a child with cancer a mother who does not know laughter? That would be cruel."

"But, does she have patience?" asks the angel. "I don't want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she will handle it." "I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has it's own world. She has to make it live in her world and that's not going to be easy."

"But, Lord, I don't think she believes in you." No matter, I can fix that. This one is perfect. She has just enough selfishness." The angel gasps -"Selfishness? is that a virtue?"

God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, here is a woman whom I will bless with a child less than perfect. She doesn't realize it yet, but she is to be envied. She will never take anything her child does for granted. She will never consider a single step ordinary. I will permit her to see clearly the things I see...ignorance, cruelty, prejudice...and allow her to rise above them." She will never be alone. I will be at her side every minute of every day of her life, because she is doing My work as surely as if she is here by My side." "And what about her patron Saint?" asks the angel. His pen poised in mid-air. God smiles, "A mirror will suffice."