Making the decision to have a child – it’s momentous. It is to decide forever to have your heart go walking around outside your body. ~ Elizabeth Stone

Friday, November 2, 2012

12lbs 6 oz and 7.5 Months Old

Elijah had his cardiologist appointment this last Tuesday. He has not gained even once ounce since last month. This is beyond frustrating. His doctor brought up the idea of a G-tube, but said that we still had a little time to work with Elijah before we would have to take action. After talking with the dieticians at UCLA, we are now adding oil to Elijah's bottles and fortifying with extra formula at night. He is also eating baby food now. It's frustrating because he eats what a typical 7 month old would eat. But he doesn't gain any weight. His body works so hard that he just burns everything we put into him. He can't eat more because his body can't handle more.

We had to cancel his cath that was scheduled for next week because he has come down with a cold. So far he has handled the cold well, and is one happy baby. The doctor also said that he isn't getting any blood flow through the PA that has the stent and that he still has decreased heart function (it isn't beating as it should). But he was happy to report that it hasn't gotten any worse. As of now, Elijah will have to go in for another cath at the end of this month and hopefully they will be able to address some of these issues at that time.

On another note, the boys had a good Halloween. Noah had a fabulous time trick-or-treating, but the baby was asleep and unable to join us. I added some pictures to commemorate the evening!

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